Sharing My Why

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Cystic Fibrosis Fundraiser

As some of you may or may not know, I am the middle child with two siblings who were born with Cystic Fibrosis (CF), the most common of all fatal genetic diseases and at present, there is no cure. In 2011, the disease finally took the life of my older sister, Julia Lyons after a lifelong struggle including two double lung transplants; my younger brother Chris still battles the illness daily and is living with 5-0% lung capacity. 

Growing up with terminally ill siblings instills a profound sense of powerlessness in a child, and I vowed that one day I would find a way to help find a cure for this horrific disease. When the companies I founded started seeing real revenue, I set up the Julia Lyons Foundation to help fund research and to also financially support families and patients with CF. I also set up my luxury watch and accessories brand JWLS, the proceeds of which go to the Julia Lyons Foundation. My siblings are a large reason why I do what I do, everyday. They’re my why. 

May is Cystic Fibrosis Month.  With the 10 year anniversary of Julia’s passing approaching, I have set the target of raising $100,000 in her memory before the end of May.  So please join us Sunday, May 30th at 9:00 AM for a day-long fundraiser on Clubhouse. It will feature special guests coming together with the aim is to raise awareness and funds to help find a cure for this deadly disease and help CF families in need. Event Link – Power Players Unite For Cystic Fibrosis. Please donate via the Gofundme page even if Clubhouse is not available to you. 

All donations will be split between Cystic Fibrosis Canada, CF Get Loud and The CF Treatment Society. I would be so thrilled to see as many of my friends, clients and colleagues there as possible. 

Sisters Emily and Julia Lyons

 

More information about Cystic Fibrosis Canada/Fibrose Kystique Canada: “For us, it’s a matter of when a cure or control for cystic fibrosis (CF) will be discovered, not if. Cystic Fibrosis Canada is one of the world’s top charitable organizations committed to finding a cure for CF, the most common fatal genetic disease affecting Canadian children and young adults. Since our establishment in 1960, our investments in research and cutting-edge healthcare have resulted in the estimated median age of survival for Canadians with CF to increase beyond 50 years of age.

 

More information about CF Get Loud – https://www.cfgetloud.ca/

More information on The CF Treatment Society – https://cfadvocacynow.com/

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